Right hemisphere strokes can cause anosognosia, where survivors don’t recognize their challenges. Learn why and how care partners can help.
"He says he’s fine. But I see him struggle."
I watch him wobble as he stands, his knee buckling slightly before he catches himself. I hold my breath, waiting for him to notice. To acknowledge what just happened.
Instead, he turns to me with confidence and says, "See? I’m fine."
Fine? He nearly fell—and doesn’t even realize it.
I try to explain, but he shakes his head. "You worry too much."
I feel like I’m talking to a wall. I see the struggle, but he doesn’t.
I wonder—how do you help someone who doesn’t even realize they need help?
This isn’t resistance. It’s something deeper—and it has a name.
Anosognosia is a neurological condition where a person is unaware of their own impairments. It isn’t denial. It isn’t stubbornness. It’s a disconnect caused by damage to specific regions in the brain—most commonly after a right hemisphere stroke.
And that leaves you—the care partner—carrying the full weight.
You’re trying to prevent another fall, make therapy appointments stick, and somehow protect the relationship in the process.
It’s not just exhausting. It’s heartbreaking.
Researchers have identified several key areas involved in self-awareness, including the insula, frontoparietal cortex, and thalamus. Damage in these regions disrupts the brain’s ability to detect mismatches between intention and action—like trying to move a paralyzed arm but receiving no internal feedback that the movement failed (Karger, 2023).
This means your loved one might genuinely believe they can walk, drive, or manage daily tasks, even if they can’t.
Anosognosia is also frequently linked with left neglect, social misperception, and reduced empathy. According to a 2023 study published in Scientific Reports, these combined deficits increase caregiver strain and elevate relational tension (Nature, 2024).
As a care partner, this can feel maddening.
You're watching falls, missed meds, repeated missteps. You're correcting, reminding, guiding—and still, you're the one who ends up feeling blamed.
But here’s the truth that can change everything:
They’re not pushing you away. Their brain isn’t flagging what you can see.
This isn’t easy. It affects safety. It strains connection. It puts your relationship at risk. But once you know what's really happening, you can shift your approach—and get back to being a partner, not just a protector.
Instead of confrontation, use subtle strategies that help your loved one experience their deficits in real time.
Example: Left Neglect at Meals
Example: Finding Items
Example: Dressing or Shoewear
This invites them to self-correct without confrontation
Example: Doorways and Bumping
Example: Missed Emotional Cues
Say: "I’m feeling really frustrated right now. Can you tell what might be bothering me?"
Follow up: "What do you think my face is saying?"
These strategies shift the burden from confrontation to collaboration. They help your loved one participate in their awareness-building—and give you a break from constantly correcting.
According to a review in the Journal of Neuropsychology, structured feedback, experience-based learning, and task-specific training can significantly improve insight in stroke survivors—and reduce care partner burnout (Flint Rehab, 2023).
Another large-scale study from the NIH found that nearly 30% of right hemisphere stroke survivors experience moderate to severe anosognosia, with persistent symptoms in about 10% of cases. Those cases correlate with larger lesion size and greater relationship strain (PubMed, 2021).
In short: you're not imagining this. And you’re not alone.
It’s not denial. It’s brain damage. Knowing the difference can save your energy—and your relationship.
Your frustration is valid. So is your exhaustion.
Changing how you respond can change what they notice. Let them experience it. Don’t force awareness—guide it.
You deserve support. This isn’t a one-person job.
Progress is possible. With the right tools, both of you can move forward.
Want more tools like this? Explore deeper strategies and expert resources at LIFE Aphasia Academy®.
There’s a story I want you to read—it’s short, but powerful. It’s called Are You Lisa or Elena? And the truth is... most care partners are living one of these stories. I want you to find out which one is yours.
https://lifeaphasiaacademy.co/f/are-you-lisa-or-elena
You’re not alone. Forward this to someone who needs it, or explore more resources to support your next step.
Categories: : anosognosia, cognitive stroke recovery, right hemisphere stroke, stroke awareness, stroke caregiver support, stroke denial